Join the Fight today!
Fight for Chrissy and Amanda is a non-profit 501c3 organization dedicated to providing support to Christine (Chrissy) and Amanda Grube, two little girls with a devastating terminal illness called Giant Axonal Neuropathy (GAN). Likened to a pediatric form of ALS, this disease insidiously robs the children of the use of their bodies, the ability to speak, and eventually claims their lives.
Hope for their survival exists in the form of an experimental gene therapy for which Chrissy is now a potential candidate and we hope in time Amanda will be as well. Without this hope, their families are condemned to watch their angels wither and die. The search for a cure has been driven by private contributions raised by the GAN family community.
Fight for Chrissy and Amanda is designed to help further this live-saving research and to improve the lives of the girls through providing them with medical care, services, and equipment that enhances, supports, and enriches their lives.